Olivia went for her Neuro f/u on September 15, 2005 and we are still at the point we were 6 months ago. There is still no diagnosis for Olivia, more blood tests were done and we will see from there.
There is lots happening in our medical system that the government is not informing us of. We were informed that the neurology department at the Montreal Children's Hospital will only be able to see 1,900 patients per year, as of the opening of the super hospital (CHUM). They now see 6,000 patients per year, what do you think will happen to the other 4,100 patients. It is very unfortunate that these children need to suffer more than they already do. Also, i think that the parents have enough to deal with in having a child with special to needs, we don't have the time or energy to fight.
Rest assured my energy for this fight is just beginning to build. I will go public and speak for all the children who are not able to be given services because they DO NOT HAVE A DIAGNOSIS. Olivia needs and requires the same services as any other child with a name to their syndromes. This will not end here, I will make sure that she gets what every other child is entitled to. Our lives are difficult enough and to fight with the medical system is not something we need but something that I WILL DO.
FRUSTRATED
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