First and foremost Olivia's fundraiser was a great success and we are proud to say that 20,000$ was raised to help our little girl who has the unknown. Thank you to everyone who contributed to help us help Olivia.
A lot has happened since the event Olivia was in and out of the hospital twice for 10 days with her crying rages once again. As usual the only answer we get is that no one knows why she does this. Olivia cried for 16 hours straight one night and day and the doctors are not able to help, amazing when you think that men are going to moon and they cannot figure out a neurological disorder.
Basically in a nutshell we were told that we are not to take Olivia back to hospital is she has another outburst and that we are to learn to live with it, I'd like to see them live with it. So now the MCH has helped us find other resources to help with with some respite care for Olivia. We will be taking her for a 24hr stay at the Lighthouse, a beautiful homelike setting for families in need of some time to recuperate from difficult situations.
So another Brain MRI is scheduled for Dec 15, if this one is not cancelled due to hype for the H1N1 virus and how there are not enough nurses. Personally I will not inject my daughter who already has a low immune system with a deadly virus that her body will not be able to fight. So now Olivia is on 3 medications to keep her calm and to help her sleep, things have been a little calmer and we will do everything to keep it that way.
We are going to try to see if a doctor at the Schneider's Children Hospital in New York can maybe help us or at least try to. We will do anything to get answers and we will stop at nothing.
We will keep you posted.
