Hello everyone,
It has now been one month since Olivia is back on her meds and she has been doing well for the last week, no crying rages and has been reasonably calm, her sleeping is still a little troublesome but not so bad.
So the doctors are not sure why she goes into crying rages, they thought it may be migraines but have sort of ruled that out when the migraine meds stopped working. Olivia is now taking her Tegretol (anticonvulsant) as well as Risperdal (antipsychosis) to help stop the rages. The combination of the two seems to be okay but a struggle to try to give it to her 3 times a day. We hope that will help to stabilize her mood swings (typical girl i guess), the doctors say it may be caused by a lack of communication because Olivia is not yet able to speak. Who know maybe this maybe that, it is all we have been hearing for 4 ears now, just give us some answers. Everything is an unknown with Olivia. There have been 3 cases in the last 15 years like Olivia with her crying rages, get this one is now an adult and seen in a different hospital, one child unfortunately passed away due to other health issue and that leaves Olivia our medical mystery. And from what we are told the patient seen at a different hospital is 18 yrs old and still has her fits, let me tell you this is not something to look forward to if it last a lifetime. We are very grateful for the help that we are getting from the social worker as well as the neurology nurses at the MCH.
Well on a better note, Olivia's fundraiser is coming up and you are interested in attending send me a message at francapalermo@hotmail.com and I will contact you with the details.
Frustrated Mom & Dad
