Thursday, July 31, 2008

Autism Assessment

Well today was the day that my husband and I met with the Psychologist from the Children's to assess Olivia's developmental history. As usual we feel like
parates who constantly repeat themselves and in the end get nowhere. We gave her all the details she needed to hear and of course she told us that she does not feel that Olivia fits into the ASD spectrum. What a surprise, we could've told them that. We knew that she doesn't fit the spectrum, but I guess they needed to rule it out. So now they are asking us to go back next week with Olivia, so that they can evaluate her to complete the file.

How much more frustrating can this get, no one is able to give us any answers to anything. All they tell us is that maybe one day somebody will have heard of a similar case. Do they think that we have time to waste waiting, that is why we are so keen on getting her stem cells done.

Frustrated

Tuesday, July 29, 2008

Nervousness

Olivia always seems to be very nervous and wanting to bite everything. She is obviously very frustrated but cannot express it to us. I have made an appointment for her to see a pediatric dentist maybe her teeth are bothering her. Olivia is hypersensitive therefore does not allow me to brush her teeth. When I tried to do it with a wet face cloth she bit my finger.

Yesterday was okay but she did not want to nap at all, making it difficult for her to fall asleep. Apart from her 10ml's of Tegretol I also gave her some Melatonin to calm her down. It is unfortunate but drugs are what works, and we need some sanity now and then.

Wednesday, July 23, 2008

Calmness

Well it has been a while, Olivia has had a few calmer days. She was on a rampage last week, doing very scary things to herself in her rages of fit. She scared me so much one day that I called my husband to come home from work. She was having one of her fits and she began to pull at her hair and clothes and was trying to bite herself. I was terrified and took her to the doctor, of course by the time we got there she had stopped. Very frustrating, next time I will video tape it and show it the them.

She is no longer in daycare, they are unable to handle her rages, or more they cannot be bothered. So I have her home with me everyday until she can start at another daycare, and hopefully that works out well.

Monday, July 7, 2008

A Very Long Day

Today was a rough day. Olivia woke up at 3am and didn't stop crying until 6am. It was the same way all day, she just cried and whined until she fell asleep at 4pm for a nap. I wish I could understand what she is going through, and why all these mood swings.

The phsychiatrist last week was not able to tell us anything, she says we need to wait for the AUTISM assesment and see what they say. Everything is about waiting but mean while nothing is getting done. Hopefully I will get a call soon for the assessment. This is the last test to be done.

Thursday, July 3, 2008

The Storm is back

Well is was great for a few days with no tantrums and hysterical crying, and it is back. It started at about 2am and lasted until 4am, and then started all over again at 730am and just ended at 1045am. I am glad that we are going to see a phsychologist tommorow at the Children's to evaluate her behavior. Maybe she will be able to give us some answers as to why she is always in a rotten mood.

I can probably answer that, the poor child wants to do so much but is restricted, and trapped in her own little body. Frustration seems to be the cause of her outbreaks. We will see what the doctor tells us.