Olivia is doing well and climbing everywhere and getting into everything. Although she is not able to walk on her own yet, she finds ways to get around the house. We are very grateful for the progress that she has made and we are hopeful that she will continue to progress.
We have seen great things happen with Olivia since her treatment that we have decided to take her for another treatment in June 2009. I am so confident that these treatments are what is giving her the ability to pull to stand, and climb the steps on her knees and just the vibrance in her. Lets not kid ourselves Olivia still goes through nights where she doesn't sleep and her wake up time is 5am every morning. Olivia does not speak therfore making communication very difficult, what she does is whines most of the time, but I guess that is a form of communication for her, but drives me and my husband crazy.
We felt that as parents we could not wait until October to take her back to the DR, therefore we are jumping the gun and hoping that the next fundraiser will help us. Olivia will be screened once again for ANGLEMAN SYNDROME and we will see where that takes us. She was already tested but the reasearcher feels that we should have further testing done. We take it one day at a time and enjoy every second that she makes us smile and cry...
No comments:
Post a Comment